My one disappointment with Sensible Medicine, as we near the end of our second year, is that we don’t have more people writing from a patient perspective. I wrote one piece and Kristin Inciardi published a great one, but that is about it. Thus, I was thrilled to receive this one from John Horwitz. I am not sure what I should call it, a prose poem maybe? It doesn’t really matter; I do know it is great.
Adam Cifu
Many doctors tell me why I should take these medications. Some have told me that I will die if I do not take them.
They never want to know why I shouldn’t.
I had a heart attack and I now have moderate renal insufficiency. For my heart, they prescribe statins to lower cholesterol, beta blockers to slow my heart, anticoagulants to thin my blood, nitrates to dilate my coronary arteries, enalapril for hypertension, and prophylactic aspirin. Also on the list is duloxetine for my mood, esomeprazole for upper GI bleeding, and sildenafil for erectile dysfunction. For my kidneys there is empagliflozin, a selective mineralocorticoid antagonist, and an SGLT-2 inhibitor.
My primary, nephrologist, and cardiologist don’t communicate and soon I have side effects from every drug they have prescribed. Increased cholesterol, joint pain, loss of taste, headaches, too much potassium, irregular heartbeat, type 2 diabetes, and Fournier's gangrene.
The cardiologist orders a nuclear treadmill test, angiography, a dietary consult, and more medications to correct abnormal test results. Then there are more stents or open heart surgery. The nephrologist wants a kidney biopsy, a dietary consult, and orders more tests and medications. He is confused by unimproved test results, starts dialysis, and waitlists me for a transplant. The primary wants a social work consult and orders a norepinephrine dopamine reuptake inhibitor for mood enhancement before I have even been seen. The social worker thinks group cognitive-behavioral therapy is relevant because of my age.
After being shuffled from doctor to specialist to doctor to specialist, poked, prodded, medicated, analyzed, believed, doubted, examined, and cabbaged over a two year period — while spending a small fortune I could not afford and what remains of an ever dwindling life expectancy – I think I could have stayed with the healthy eating routine and daily exercise that used to work well for me.
Meanwhile I realized that the only reason for so many tests, surgeries, and medications was that there is no cure, no remediation, and no reversal of heart and kidney disease. All the medications did was muddy the test results and present conflicting evidence of relapsing or remitting symptoms. In the final analysis the test results were only a compilation of best guesses. Out of money, bedridden, disheartened by lack of progress, and greatly diminished, thoughts of suicide are welcomed.
So, what do I think?
I’m holding out for something better. Why don’t I skip the hundreds of thousands of dollars in medical bills, surgical procedures, tests, years of dashed hopes, over and under medication, group therapy, and just enjoy the time I have left.
If YOU have something better, bring it!
No one is sure what the future holds, and perhaps some medication would be helpful, but the rush to overanalyze and prescribe for the elderly without asking what WE want seems to be the standard.
Everyone alive today will die - what many of us want (but are unable to articulate) is a guide on that journey.
And, when our time comes, we want to leave with dignity.
John Horwitz is retired, and his life is hard to do justice to in a few sentences... He has been a longshoreman, an ironworker, a truck driver, and a professional photographer.
Photograph by Annie Spratt
Wow. I was inclined to make a joke, but I won't do that. This is serious and sad and common too in this age. Don't know how old you are but I'm 76, in relatively good health, exercise every day, keep the weight down. But I know that my 'health' could flip on a dime. One attack of whatever could sentence me to life in a wheelchair, dialysis, an iron lung, or maybe assisted care by not-so-loving attendants triggered by my race, religion, or social status.
On a serious note, please try God. I'm working on that relationship and it gives me peace most of the time. Best!
I’m a Dietitian with 40 years experience in many settings. It’s all BS. Most medications and diet advice. The only diet advice that is relevant is to avoid all processed foods. Eat foods without a food label. Be active and meditate. Medicine is a business, like any other business, the more they sell, the better they do. And, they have the added benefit of playing on your emotions/health/life to sell/prescribe meds, tests, and procedures.