It’s been a couple of years since I first posted this essay. As students at medical schools across the country begin medical school, I thought I’d take the opportunity to repost it. Please share the piece with anyone you think might be interested or might have something to gain from reading it.
EJ was a 32-year-old man with risk factors for HIV infection who presented to the emergency room with two weeks of worsening shortness of breath. When he arrived, he was tachycardic, tachypneic, hypoxic, and his chest x-ray revealed diffuse parenchymal infiltrates consistent with pneumonia.
One of the many privileges of being a physician and a professor of medicine at a “prestigious” medical school is getting to talk to young people who are considering a career in medicine. Most often, students are “referred to me” by a parent. The parent will find out what I do, talk to me for long enough that a request will seem neither awkward nor presumptuous, and then ask if I might speak with their child. I’ve never said no. What reliably follows is a conversation with a smart, earnest, mature, and absurdly accomplished young adult. They ask good questions that get at the decisions that are most real to them at the time.
Should I do research this summer or get a job?1
I want to take physics over the summer to free up time in my schedule. Will the admissions committee frown on this?2
What should I major in?3
One afternoon, after having had the usual conversation with a young man (who I honestly thought would be wasting his evident brilliance in a career in medicine), I sat at the table in my office and considered what advice I would give a student if one ever said, “I don’t even know what to ask. What advice do you think is most important?”
I thought I could easily come up with something inspiring. But as I pondered the prompt, all I could think of were the pithy statements that fill white-coat ceremony addresses or the conclusions of personal statements.
“Take care of the patient, not the disease.”
“Combine your love of science and your desire to care for people.”
“The secret of taking care of a patient is caring for the patient.”4
On the verge of giving up, and knowing that nobody was actually ever going to ask for my random musings, I realized that a drawing that hangs in my office pretty well summarizes four pieces of advice I’d like to give. The drawing is a simple yet beautiful piece of art: charcoal on paper, a hand and arm fading out just proximal to the elbow.
The drawing was given to me by EJ, a patient I met during my second clinic of internship, September 1993. EJ’s primary concern was that he was infected with HIV. During this first visit, he told me his story. After graduating from high school, he moved to New York City to pursue his painting career. He spent much of the late 1980s in New York, working on his art and having some risky sexual encounters. In 1993, he left New York, moved to Boston, and got assigned to me, a new intern, as his new doctor.
After taking his history and doing his physical exam, I recommended HIV testing. “Not going to happen,” was his reply. My argument for early diagnosis and initiation of “cutting-edge” HIV therapy went nowhere. It was during this visit that we wrote the script that we would act out every few months for the next three years. Each of our visits would begin with me taking care of any pressing concerns and end with me recommending HIV testing. He would decline. By my final year of residency, we would both smile when I made the pitch. We had become friends during these visits. I considered the visits unproductive.
I continued to care for him after my residency ended. In November of that next year, he paged me one morning. I could hear his breathlessness over the phone. He told me he had been feeling badly for a week and was now too short of breath to make it through a shower. I met him in the emergency room and presented his history to the resident. In rapid succession, he was diagnosed with Pneumocystis carinii pneumonia and HIV.5
This story has a happy ending. EJ was diagnosed with HIV at an opportune time. His pneumonia was treated, and he was started on a regimen including the newly released protease inhibitors. His immune system recovered, his health improved, and he has continued to be a productive artist. Nearly 30 years after we met, he still occasionally sends me photographs of his work.
So, back to the drawing: what are its lessons and why should aspiring medical students care? I will address this to the future doctor.
Lesson Number 1: Often, the most important service we provide a patient is not what we think it is.
While caring for EJ, I thought I was failing him. How could I let this man’s disease progress, untreated, for years? But really, unknown to me, we were forming the therapeutic alliance that would enable him to reach out to me, as a trusted confidante, when he was ready, or forced, to face his illness. This lesson remains with me. I am reminded of it every time I abandon my own agenda to meet the needs of a patient. You will begin caring for patients before you have much medical expertise. As a medical student, you are unlikely to make diagnoses that have eluded the more senior members of your team. You do, however, have a great deal to offer.
A few years ago, while I was attending on the general medicine service, I admitted a man who was not only terribly sick but hated doctors with a unique passion. Once he was stable enough to exercise his own will, he informed us that he was going to leave the hospital. If he had done this, he would surely have died. The medical student on my service spent hours with this man. Even though this patient would barely speak with me, she found a way to communicate with him. He remained in the hospital for a couple of weeks and left with a management plan that has kept him alive for years. The third-year student saved his life not through great clinical acumen or medical knowledge but through caring commitment.
Lesson Number 2: Much of what you are taught is wrong.
This second lesson might be the most important one. Your most committed and brilliant teachers will teach you things that are later proven wrong. And when I say wrong, I mean wrong. And not wrong at some later time, just wrong. There was a general internist where I did my residency whom I worshiped. He was a great doctor, a committed educator, and just a smart, really good guy. He brought my interviewing and physical examination skills to a whole different level. He taught me how to manage chronic pain and how to counsel patients on sensitive issues. I remain indebted to him and still draw inspiration from him in the way I practice medicine. I also now recognize that some of what he taught me was incorrect.
One thing he taught me was that getting too close to patients was dangerous. He told me never to accept gifts from patients. He had strong arguments to support this advice, backed by personal experience.
Six months after EJ’s admission, I took a new job in a new city. When I told EJ that I was moving, we hugged, and he told me that he had a painting he wanted to give me. Remembering the advice of my mentor, I told EJ that I could not accept it as a gift and insisted that I pay for the painting. I am embarrassed telling this story. Here was a person attempting to say a heartfelt thank you with a nonmonetary, personal creation, and I refused his gift. Years later, I came home to a poster tube containing the drawing that hangs in my office. EJ had given me a second chance to accept a gift — in a way that I could not refuse.
Someone once said that as we get older, more of our patients become friends and more of our friends become patients. I have learned to welcome this as a part of my job and understand the careful nuance these relationships demand. I also know that much of what I am taught and much of what I teach will be proven wrong.6
Lesson Number 3: Keep a sunshine folder.
At the beginning of my career, my section chief suggested I keep a sunshine folder, a folder in which to stash thank-you notes from patients, commendations from your chairman, and other small accolades. As a cynical New Yorker, I scoffed at this idea. I remember finding the name “sunshine folder” repugnant. Nevertheless, on a day of weakness, I started one. EJ’s drawing could be in my sunshine folder if it were smaller and didn’t hang on my wall.
Why do you need a sunshine folder? Because medicine is hard. You will work harder than you ever have, and the stakes are impossibly high. Things occasionally go badly. There are bad outcomes when you do everything right, and, even worse, when you don’t. One of the things I love about the practice of medicine is that you can never become overconfident. Whenever I feel like I am really mastering the art and the science of medicine, I am sure to be reminded of how endlessly complex it is to care for people. To paraphrase William Osler, there may be a finite number of diseases, but there are an infinite number of ways they present and an infinite number of ways that we, as humans, react to them. The sunshine folder is there to brighten your spirits on the difficult days that lie ahead.
Lesson Number 4: Know your stuff.
On that November day when EJ called me, critically ill, he needed a skilled physician who knew exactly how to care for him. He did not care that I kept a sunshine folder, or doubted my teachers, or recognized that our greatest impacts are often unintentional.
Your mission is to learn as much as you possibly can for the good of your future patients. You are not working for grades, or to pass a course, or for some academic honor. If you ever say to yourself:
“I can stop studying, I know enough to pass.” or
“Well, if I fail this exam they’ll let me retake it.” or
“You know what they say. P = MD.”7
Stop and remind yourself of why you are studying. Yes, this is going to be hard, but it is what you signed up for, and it is the cost of the privilege of being a doctor.
But do remember, while you immerse yourself, you were accepted into medical school not just because someone thought you were smart and could do the work. You were accepted because of who you are. Take time to be that person. Being yourself is important to your health and to the health of your future patients. Visit the museum now and then and ponder some great or enigmatic art. Take far too much interest in your favorite sports team. Take a printing or ceramics class. Spend time on that collection that your friends make fun of.
There are four pieces of advice you did not ask for. I hope they are useful. You could jot them down and stick them in your sunshine folder. I hope they help you and inspire you to do the best you can for your future patients. I also hope you will not someday decide that my advice was wrong.
Either one, just do something worthwhile. You can spin almost anything to look good in your application. That includes, “I needed money so I took the highest-paying job I could find.”
They might frown a little, but if you present a good reason, you’ll be fine. A good reason is that I needed space in my schedule to take a course with an extraordinary Professor. A bad reason is that I thought I was more likely to get a good grade over the summer. As an aside, I met my wife while taking a summer physics course to fulfill my pre-med requirements, so I may not be the right person to ask.
Whatever you love and can throw yourself into for four years.
Ok, I plagiarized this one from Francis W. Peabody.
I’m being historically accurate with the name. It is presently called Pneumocystis jirovecii pneumonia.
Since I first wrote this essay, I realize that I am being too harsh to my former mentor. The lessons he was teaching were meant for new doctors. I am pretty sure that he expected his trainees to adopt nuance as they matured.
That means Pass = MD, as in nobody will care how you performed in medical school after you receive your degree.
Photo Credit: Unseen Studio
Dr. Cifu, You and I are about the same age. I have been in residency education for 30 years, now as a Program Director in Family Medicine for the last 5 years in a semi-rural location in the SE US. Culturally, we are a far cry from Boston, but people are the same everywhere. Everything you wrote resonated with me as I have had the same experiences over these many years.
Despite being told not to accept the gifts of patients, I frequently wear a bracelet made for me by a patient who I have cared for with our residents since moving to this new location. Twenty years ago, an elderly lady whom I diagnosed with hyperthyroidism as the cause of her atrial fibrillation, which had disabled her knitting ability, brought me a hand-made blanket for my new home. She had asked me once ( I had not remembered) about the colors of my decor, creating a beautiful masterpiece which took her a year to complete. She and her daughter came to the clinic to present it to me near the end of her life (she died a few months later). I accepted it through tears and heartfelt thanks that any patient had cared enough for me to be so meticulous and thoughtful. Can anyone imagine turning down such a gift? Never. I would rather have gone to jail than perpetuate such an uncaring act.
We have far too many stupid and thoughtless "rules" to follow in medicine which have, in many ways, destroyed the doctor-patient relationship. I find myself frequently telling my residents to consider Direct Primary Care as a mechanism to take back control of patient care and those relationships rather than bow to insurance and other external forces that care little about outcomes other than profit margin.
Thank you for such a thoughtful piece of writing and exceptional advice.
M. Shawn Morehead MD
Thank you for this wonderful piece, Dr. Cifu. As I read it and tried to put myself in your shoes, all I could think about was the blaring red flags on epic for EJs “care gaps” and quality metrics that I would not have met. I feel that I have lots of patients like EJ, who are pleasant and kind but always have a ton of problems which make it next to impossible to ever close out the care gaps while addressing their acute concerns in 10 minutes…
Usually, when I see these patients names come up on my schedule I end up getting immediate anxiety as I can anticipate the fact that I won’t address anything epic is telling me to, and will have to explain that to my preceptors. Any advice on how you kept this anxiety in check when you approached patients such as EJ? It feels to me that it is detracting from my ability to bond with patients as you did.